Jude’s Upcoming Trip to Delaware

This hospitalization has been tough on Jude. He has once again been faced with a big battle but once again he is fighting it. He’s getting better everyday. We still don’t know exactly what virus he contracted. We just know it was a bad one. This virus effected his respiratory, neurological, digestive and even cardiac systems. We have had a lot of scary nights and days but I am happy to say that it looks like this virus is coming to an end. He’s a fighter for sure.

As you know, Jude was once again denied for his synagis vaccine that we have to raise money for every year. It cost 3000 for one shot and he gets eight! We were able to raise money for this vaccine the past couple years but unfortunately this year we were unable to. We kept Jude out of the hospital for several months and have taken extra precautions with him not having this vaccine but unfortunately here we are.

Jude has a pending application to get a grant to cover his shots for the remainder of the cold and flu season. He’s already missed multiple but they still think he needs to receive what he can. This application process has had a couple bumps in the road but thankfully it looks like we are moving forward.

In recent months we have noticed a bit of a decline in Jude’s movement and fine motor skills. His therapies have been more challenging and we have also noticed some discomfort when moved in certain positions that didn’t bother him before.

We will be heading to Wilmington Delaware for Jude’s upcoming appointments at AI DuPont Nemours Children’s hospital in February. He has a busy schedule while we are there as he sees multiple specialists, therapist and also receives imaging. This is a long trip that is pretty rough on Jude however, we know it’s the best place we can take him. Please be praying that we can find answers as to why we have noticed the lack in movement and spinal discomfort. We have always known that Jude has spinal stenosis, kyphosis and a cord tether. They have talked about the possibility of surgery his entire life and it’s always something we pray he doesn’t have to go through but also prepare ourselves for the possibility. It takes two days to travel there as we have to stop and give him breaks from his car seat as he tends to seize and also experience stiffness and discomfort. We will be starting this journey on February the 13th and we appreciate all the prayers for smooth and safe travels.

Jude’s daddy will be taking off several days from work for this trip as he would never miss such important appointments with Jude. However, it can be financially taxing with the cost of the trip and the time off of work. God has provided for every trip and every season and we are always thankful and hopeful. We will be attaching our fundraising page for those who feel led to help out. Every dollar matters and no amount is too small. We have been so greatly blessed with such a wonderful tribe that is always there to love, support and pray for our Brave Little Warrior.

We will be taking this trip with Jude, mommy, daddy, grandma and grandpa. Jude is a loved little boy with a family that all steps in. We love you all and are so thankful for each of you!

~ Hannah

Click here to donate

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3 thoughts on “Jude’s Upcoming Trip to Delaware

  1. God knew exactly what He was doing He made you two Jude’s parents! You guys are such great parents for that sweet boy. I’m sure it’s a very difficult job, but I just want to encourage you as you keep walking forward one day at a time. Thank you for sharing your journey! Your sweet family is an encouragement to so many and such a great testimony to a great God! I’m praying that you continue to feel His presence as well through the days ahead!

  2. Prayers for safe travels I know what it’s like to go on a long trip I have a rare disease and I travel from NC to Maryland to Johns Hopkins I just can’t imagine how hard that trip is on Jude always in my prayers❤️

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